From: "\"Doc\" Bruce K. Melson" <firstname.lastname@example.org>
The HHS, NIH and CDC could easily solve the puzzling malaise of CFS if
they stopped overlooking the clues that suggest infectious pathogens are
the most likely cause.
An official CDC report entitled, "FY 2000 Overview of the Chronic Fatigue
Syndrome Program-Centers for Disease Control and Prevention," presented
at the February 2000 Chronic Fatigue Syndrome Coordinating Committee
(CFSCC) meeting, stated: "The peer review committee and Board of
Scientific Counselors were concerned that CFS laboratory efforts were
over-committed to gene expression analysis and strongly recommended CDC
develop a program to search for novel or poorly characterized infectious
agents in CFS patients." *
The HHS, NIH, CDC and the CFSCC rejected the advice of these twenty-six
scientists and research peers of the CDC. The June 2000 GAO Report on
Chronic Fatigue Syndrome confirmed the lack of research conducted by the
NIH and CDC to find infectious pathogens in CFS patients.
In October 2000, Donna Dean, Ph.D., former co-chair of the CFSCC,
organized a CFS State of the Science (S.O.S.) Meeting for the NIH and
CDC. Dr. Dean excluded infectious disease specialists. This is
important because future CFS research grants will be based on the
theories presented at that S.O.S. Meeting. Additionally, without
consulting the CFSCC, Dr. Dean moved CFS from the National Institute of
Allergy and Infectious Diseases into the obscure Office of Research on
Women's Health. No other disease has ever been housed there. CFS is
now officially considered a woman's disease, despite the high numbers of
men who suffer from CFS. No other disease shared by both sexes has ever
been so designated.
During the February 2000 CFS S.O.S. Meeting, the mycoplasma researcher
Gail Cassell, Ph.D. was the chairperson. During that meeting, Lieutenant
Colonel Charles C. Engel, Jr., M.D., M.P.H., and Sam Donta, M.D., of the
Veterans' Administration Gulf War Illness Study, gave extensive
preliminary reports and statistics. They reported that the Veterans'
Administration had enrolled five hundred Gulf War Veterans for an
eighteen month double blind study, using doxycycline to treat three types
of mycoplasmal infections. These infections were found in 40% of the
Veterans whom they tested. These are the same types of mycoplasmal
infections that are being found in civilian CFS and Fibromyalgia
However, the HHS, NIH and CDC omitted these percentages from the minutes
of both the February 2000 CFS S.O.S. Meeting and the February 2000 CFSCC
Meeting. Additionally, the entire minutes of the February 2000 CFSCC
Meeting have been nearly inaccessible to the public for over a year. The
minutes of all other CFSCC Meetings are easily accessible. Despite our
repeated requests to correct this situation, nothing has been done.
These omissions are particularly disturbing in light of recent European
studies with CFS patients. During the January 2001 America Association
for Chronic Fatigue Syndrome (AACFS) Meeting in Seattle, Belgian
physician Kenny De Meirleir, MD, reported finding mycoplasmal infections
in 67% of his CFS patients. He is successfully treating CFS patients
with long term antibiotics and his patients are not relapsing after
Official summaries of the AACFS meeting, presented by CFSCC member
Anthony Komaroff, MD, and David Bell, MD, failed to report Dr. De
Meirleir's mycoplasma findings or his antibiotic treatment protocol.
When we questioned Eleanor Hanna, current co-chair of the CFSCC, she
stated that she was not interested in funding research for mycoplasmal
infections in CFS patients.
The Mycoplasma Registry agrees with the peer review committee and Board
of Scientific Counselors. We suggest research on infectious pathogens
such as mycoplasma, chlamydia, rickettsia, brucella, streptococcus, and
HHV-6a, as causative agents of Chronic Fatigue Syndrome, Fibromyalgia and
Gulf War Illness.
The HHS, NIH and CDC appear to be determined to prevent research from
being conducted for mycoplasmal infections in Chronic Fatigue Syndrome
patients, despite the fact they have already funded more than five
hundred mycoplasma studies. Their actions do indeed indicate a puzzling
Sean and Leslee Dudley
"When the way comes to an end, then change - having changed, you pass through."
Bruce "Doc". Melson